The National Library of Wales will be lighting up this October to help make ‘hidden’ disabilities more visible.
The charity Shine is calling on its supporters and the public to ‘Go Yellow’ during Spina Bifida and Hydrocephalus Awareness Week: 22.10.18 - 26.10.18, and especially on World Spina Bifida and Hydrocephalus Day, 25th October, to help raise awareness of these conditions.
Shine, runs services and campaigns for more than 11,500 members in Wales, England and Northern Ireland. Shine supporters will be having fun and fundraising around the Go Yellow theme and sharing their selfies and shout-outs #ShineBright18
Behind the fun there is a serious message. The charity is calling for better access to health and social services for people with spina bifida and hydrocephalus, both complex conditions. In particular, improving access to health hubs, so that the many specialists needed can be seen on one day, thereby reducing cost, stress and improving patient outcomes.
Spina bifida and hydrocephalus are life threatening conditions, known as ‘neural tube defects’, which can affect a child’s development, motor skills, and ability to cope with everyday life. This can have a huge impact on the whole family. Many children with spina bifida also have hydrocephalus - which can also occur later in life - and experience many operations and complications. Taking folic acid three months before conception until the fourth month of pregnancy can reduce the risk of a baby developing neural tube defects.
Shine provides specialist support pre-birth and beyond for anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff.
For more information and to get involved see the Shine charity website #ShineBright18
Elin-Hâf 01970 632471 or firstname.lastname@example.org
The charity Shine